Saturday, March 21, 2009

We are home.......

What a week! We just got home late this afternoon. Cody did great with both surgeries yesterday. The nurses thought he was adorable! He wasn't as into them as they were into him! He did not need any pain meds until during the night and then only needed Tylenol and Motrin. The nurses said he did better than most of the big kids do! Connor and Casey are glad to have us home. They spent the week with mom, grandma and Alice. Casey enjoyed spending part of today with his friend, Clay.

Thanks for the prayers, e-mails and text messages. We are so thankful for all of those who care for Cody! He's certainly a trooper!

Thursday, March 19, 2009

Cody's big adventure.......

We are on quite a ride here at Children's! Cody had a CT 2 weeks ago and it showed larger ventricles than 6 months ago. We were scheduled to get a follow up CT today (Thursday). Well on Monday he started vomiting and continued doing so on Tuesday. We got him in on Tuesday and they decided yes, he did need a shunt surgery.

So they admitted him and planned to do it yesterday. Well that all changed yesterday!

When the nurse practitioner was examining him yesterday she noticed his ear was still infected. We knew he had an ear infection because we'd had the twins to the pediatrician on Friday and they had ear infections. They were actaully scheduled to see about getting ear tubes on April 3rd.

Well Cody beat them to the punch!

They cancelled his surgery yesterday until we could get the ear stuff figured out. We saw the ent folks yesterday and they decided he needed tubes. So they scheduled that for yesterday. He obviously needs a revision soon. So they have decided to do both surgeries on Friday. I guess that's good in the regard that he'll only have to go under once. They just don't want him to have any infection in his body when they do the shunt surgery.

The ENT folks did not think he had as much infection and he had fluid. That makes me feel better that he is not 'infected' and that he will be okay for surgery in that regard.

So........Cody gets ear tubes and a shunt revision on Friday.

They ended up keeping him since he is indeed in shunt failure and want to watch him. As of now he's not having any 'symptoms' like vomiting or anything so he's early on in shunt failure.

Please keep him in your prayers!

Wednesday, March 4, 2009

Trip To Children's......

Yesterday was a big trip for us. Cody and Connor both needed CBC's and lead tests as part of their 2 year well checks. I decided since we were going to Children's anyway, we'd get it done there. So we did that first.

Then Connor had an X-ray of his spine........he has a dimple at the base of his spine. Thankfully, it is not spina bifida oculta. If it was we knew it was not causing him any trouble but we just wanted to rule it out. Cody's neurosurgeon read the x-ray for us so I'd know for sure.

Cody had his 6 month CT of his brain to check his shunt. Unfortunately, we have to go back in 2 weeks because his ventricles in his brain are larger than they were 6 months ago. We are praying that it's just the size they are going to be. If they have grown, it could be because his shunt is not working and he will surgery to revise his shunt. For those just joining our story, Cody had a shunt placed at 3 months of age and it was blocked (like it possibly is now) at 7 months of age. Since then he's been fine. Most kids with spina bifida need shunts because thier spinal fluid builds up in their brains. The shunt drains into thier bellies and causes no problems (unless it gets blocked..........) We go back in 2 weeks for another CT and another appt. I will post after that.

Otherwise, everyone is doing well. We're ready for spring so we can outside! Connor is really starting to talk and put two words together. Cody is hanging on to everything and walking around things! His PT is ordering him his very own walker this week! Casey is still doing well in kindergarten. We're very proud of him!

Matt's busy with ball games........The teams in his county are really good!

I'm loving our new wii, especially wii fit! I'm trying to lose my twin weight two years later!